This report examines patient organisations’ ever more critical role as knowledge brokers in an increasingly complex, data-rich healthcare system.

Key findings

  • Patient organisations are important examples of collective intelligence practiced in challenging conditions with the aim of tackling complex problems.
  • With more long term conditions and multimorbidities, more data, more available options in diagnostics, treatments, and care, knowledge is becoming one of the most critical assets of patients seeking optimal care.
  • Patient organisations, working as collectives, are in an excellent position to support the work of translating, assembling and analysing the information involved in healthcare.
  • Innovative patient organisations are already supporting the development of peer relationships, driving ambitious research programmes, sharing skills and unlocking the energy and expertise of patients. But they need support from better tools to extend this critical work.


Download here: Collective Intelligence in Patient Organisations | Nesta

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